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Brainstem Reduction and Deformation in the 4th Ventricle Cerebellar Peduncles in Long COVID Patients: Insights into Neuroinflammatory Sequelae and “Broken Bridge Syndrome”
Patiënten- en naastendag vandaag met 625 fysiek en 700 digitaal aanwezigen. Via Tantan/SusanH79 op de birdsite screenshot van een raak gedicht bij de opening. #LongCovid@longcovid
Promising research (preprint) that "proves" that there is damage to the brainstem cerebellum "bridge"! Study included bedbound patients! #LongCovid#MECFS
This is the longest I’ve ever gone without publishing an article, and the stress of not having anything ready is weighing heavy on my heart
It’s ironic considering how often I write about the importance of resting and listening to your body when it needs a break.
I’m so grateful for the Disabled Ginger community, but my body and brain clearly need a break.
I sit down to write everyday, and so far all I have is 30+ drafts with titles, a few images and (at best) two lines of actual content.
This is the harsh reality of chronic illness. It doesn’t matter how much you WANT to do something… if your body says “No”… Its a No.
You can’t try harder your way out of it. You can’t play through the pain.
The more you try to fight your body, the harder and longer the crash.
If you’re struggling to rest right now, take this as a sign to unplug. Relax. Recharge. Give your body what it’s crying out for and do it without the guilt.
We will all be here for you when you’re ready.
Sharing my article on radical rest from the archives, because I need the reminder & maybe so does someone else:
I understand wanting to go 'back to normal'. Pandemics are traumatizing and scary. Of course people want to forget them.
But they don't end when we decide we've had enough. The threat doesn't go away because we have 'Covid fatigue' or because we’re sick of masking.
We must stop denying the reality that Covid is still with us, still killing and still disabling people.
We must work on our collective trauma and push for common sense measures like masks in healthcare, free respirators and tests and clean air in public spaces.
“Back to normal” isn’t working. It’s a mirage. The comfortable lie.
But we can move towards a new normal together. One where everyone is safer and healthier. It’s not too late.
Dr. Charles Shepherd, Honorary Medical Adviser to the ME Association. Dr. Shepherd will be discussing the latest developments in the world of M.E., ME/CFS, Post-Viral Fatigue Syndromes, and Long Covid.
He will also be answering questions from attendees.
@UP8@llPK It sounds like you are working through your issues, but what the actual fuck? What I study and practice in my “social movements … in disability, pain, suffering, and marginalization” is how to live a happy life despite my disability, how to reduce my pain and suffering, and how to fight back against the marginalization from ablists. Whether it is my autism, long covid, or osteoarthritis, the first step towards a better life was recognizing clearly the challenges I face. This then enabled me to make the changes I need to make to overcome those challenges. Still working on that part, but I could not have come as far as I have without the support of other #actuallyAutistic people and others with #LongCovid.
I know, I have now led dozens of posts over the past few years with this sarcastic question. But now, with the pandemic officially declared over by the politicians and the majority of the public behaving as though Covid19 is no longer a threat, it seems particularly apropos in light of the reasons for declaring the pandemic over: to get people back to work and back to consuming. Yet, as the data from this study show, Long Covid has had an enormous negative impact on the income and quality of life for millions of Americans, particularly the poor and working class, and particularly for African Americans and women.
*Nearly 1 in 7 working-age adults in the U.S. had experienced Long Covid by the end of 2023 *Socially disadvantaged adults were 152% more likely to suffer from Long Covid *Groups with higher risk for Long Covid include being Black, LGBTQ, Hispanic, Female, or low income *In 2022, people with Long Covid lost $211 billion in wages *In 2023, people with Long Covid lost $218 billion in wages
One reason for the disproportionate effect of Long Covid on marginalized communities, particularly BIPOC and poor people, is that these groups suffer disproportionately from chronically elevated levels of the stress hormone, Cortisol, due to the stress caused by racism, sexism, homophobia, and poverty. Elevated Cortisol levels are also associated with increased risk of heart disease, hypertension, and diabetes, as well as impaired immune function.
For a really good documentary on the Social Determinants of Health and the relationship between racism and poverty on stress/cortisol levels and negative health outcomes, please see the Unnatural Causes video series
A friend has had a very dramatic drop in iron level over the past few months. Has had #COVID19 at least 3 times. She is chronically tired. The iron level was picked up on routine blood test. She doesn't have any change in bowel habit/bleeding & is post menopausal.
I recall links between iron levels and #LongCOVID; have searched for articles, but if anyone has anything they consider worth sharing with me, it would be appreciated.
@edsuom@sfwrtr Even more motivation for me there. I certainly can't afford #LongCovid, and the way even a cold knocks me out for three weeks makes it utterly necessary. I honestly don't know if I'll ever stop masking. These days, I barely notice when it's on.
